A A HERCULEAN SAGA: THE LIVED EXPERIENCE OF PEOPLE WITH BIPOLAR DISORDER
Abstract
The present study aims to understand the experience of people with bipolar disorder through the analysis of current scientific research that focuses on the lived experience of the participants. This mental disorder is characterized by severe mood oscillations that affect subjectivity and interpersonal relationships. Mental health professionals are concerned, since this condition is responsible for the highest rate of death by suicide in comparison to other psychiatric illnesses. This study is a meta-ethnographic systematic review of studies published in scientific journals between 2016 and 2021. Results are described using the metaphor ‘Herculean Saga’ which included six main meanings/concepts: 1) The first strike: loss of control of self and condemnation; 2) The first battles: the process of acceptance of the diagnosis and of the resulting vicissitudes; 3) Victory over the pit of worthlessness: the journey of recovery; 4) Meeting with enemies and friends: paradoxical support; 5) Equipment for war: weapons to face the battles and 6) Unearthed treasure: skills and strength acquired in the process of maturing. We concluded that the people with bipolar disorder live radical experiences of suffering that include the loss of control over self and experiences of exclusion and social stigma. On the other hand, understanding the illness, adhering to treatment, the persistent struggle during moments of emotional instability and an adequate support network facilitate the prospect of a process of recovery of personal autonomy.
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References
Campbell, J. (1995). O Herói de Mil Faces (3rd ed.). Cultrix.
Campbell, R., Pound, P., Morgan, M., Daker-White, G., Britten, N., Pill, R., Yardley, L., Pope, C., &Donovan, J. (2011). Evaluating meta-ethnography: Systematic analysis and synthesis of qualitative research. Health Technology Assessment , 15(43), 1–164. https://doi.org/10.3310/hta15430
Clemente, A. S., Diniz, B. S., Nicolato, R., Kapczinski, F. P., Soares, J. C., Firmo, J. O., & Castro-Costa, É. (2015). Bipolar disorder prevalence: A systematic review and meta-analysis of the literature. Brazilian Journal of Psychiatry, 37, 155-161. https://doi.org/10.1590/1516-4446-2012-169.
Crowe, M., & Inder, M. (2018). Staying well with bipolar disorder: A qualitative analysis of five‐year follow‐up interviews with young people. Journal of Psychiatric and Mental Health Nursing, 25(4), 236-244. https://doi.org/10.1111/jpm.12455.
Crowe, M., Porter, R., Douglas, K., Inder, M., Lacey, C., Jordan, J., & Wells, H. (2020). Patients' experiences of cognitive functioning in recurrent depression: A qualitative study. Journal of Psychiatric and Mental Health Nursing, 27(4), 321-329. https://doi.org/10.1111/jpm.12603.
Demissie, M., Hanlon, C., Ng, L., Fekadu, A., & Mayston, R. (2021). Why doesn't God say “enough”? Experiences of living with bipolar disorder in rural Ethiopia. Social Science & Medicine, 270(C). . https://doi.org/10.1016/j.socscimed.2020.113625.
Durgu, N., & Dulgerler, S. (2021). The meaning of recovery: The lived experience of patients with bipolar disorder in Turkey. Issues in Mental Health Nursing, 42(6), 573-580. https://doi.org/10.1080/01612840.2020.1818015.
France, E. F., Cunningham, M., Ring, N., Uny, I., Duncan, E. A. S., Jepson, R. G., Maxwell, M., Roberts, R. J., Turley, R. L, Booth, A., Britten, N., Flemming, K., Gallagher, I., Garside, R., Hannes, K., Lewin, S., Noblit, G. W., Pope, C., Thomas, J., Vanstone, M., Higginbottom, G.M.A. & Noyes, J. (2019). Improving reporting of meta-ethnography: The eMERGe reporting guidance. Psycho-Oncology, 28(3), 447-458. https://doi.org/10.1002/pon.4915
Goodwin, F. K., & Jamison, K. R. (2007). Manic-depressive illness: Bipolar disorders and recurrent depression (Vol. 2). Oxford University Press.
Goodwin, G. (2016). Bipolar disorder. Medicine, 40(11), 661-663. https://doi.org/10.1016/j.mpmed.2016.08.007
Hormazábal-Salgado, R., & Poblete-Troncoso, M. (2020). Living with bipolar disorder in Chile: A qualitative study. International Journal of Mental Health Nursing, 29(3), 488-497. https://doi.org/10.1111/inm.12686.
Kessing, L., Hansen, H., Hvenegaard, A., Christensen, E., Dam, H., Gluud, C., & Wetterslev, J. (2013). Treatment in a specialised out-patient mood disorder clinic v. standard out-patient treatment in the early course of bipolar disorder: Randomised clinical trial. British Journal of Psychiatry, 202(3), 212-219. https://doi.org/10.1192/bjp.bp.112.113548.
Kinn, L. G., Holgersen, H., Ekeland, T. J., & Davidson, L. (2013). Metasynthesis and bricolage: An artistic exercise of creating a collage of meaning. Qualitative Health Research, 23(9), 1285–1292. https://doi.org/10.1177/1049732313502127.
Kinn, L. G., Tanaka, K., Bellamy, C., & Davidson, L. (2018). “Pushing the boat out”: A meta-synthesis of how members, staff and family experience the Clubhouse model. Community Mental Health Journal, 54(8), 1199-1211. https://doi.org/10.1007/s10597-018-0257-5.
Laursen, T. M. (2011). Life expectancy among persons with schizophrenia or bipolar affective disorder. Schizophrenia Research, 131(1-3), 101-104. https://doi.org/10.1016/j.schres.2011.06.008
Maassen, E. F., Regeer, B. J., Regeer, E. J., Bunders, J. F., & Kupka, R. W. (2018). The challenges of living with bipolar disorder: A qualitative study of the implications for health care and research. International Journal of Bipolar Disorders, 6(1), 1-10. https://doi.org/10.1186/s40345-018-0131-y.
Moreno, D. H., & Andrade, L. H. (2005). The lifetime prevalence, health services utilization and risk of suicide of bipolar spectrum subjects, including subthreshold categories in the Sao Paulo ECA study. Journal of Affective Disorders, 87(2-3), 231-241. https://doi.org/10.1016/j.jad.2005.04.010.
Morton, E., Michalak, E., Hole, R., Buzwell, S., & Murray, G. (2018). The ‘new normal’: Relativity of quality of life judgments in individuals with bipolar disorder — A qualitative study. Quality of Life Research, 27(6), 1493-1500. https://doi.org/10.1007/s11136-018-1811-x.
Nery-Fernandes, F., & Miranda-Scippa, Â. (2013). Comportamento suicida no transtorno afetivo bipolar e características sociodemográficas, clínicas e neuroanatômicas associadas. Archives of Clinical Psychiatry, 40(6), 220-224. https://doi.org/10.1590/S0101-60832013000600003
Noblit, G. W., & Hare, D. R. (1988). Meta-ethnography: Synthesizing qualitative studies. SAGE Publications, Newbury Park.
Pallesen, K., Brown, J., Rose, D., & Lawrence, V. (2020). An interpretative phenomenological analysis of the experience of receiving a diagnosis of bipolar disorder. Journal of Mental Health, 29(3), 358-363. https://doi.org/10.1080/09638237.2020.1755020
Perich, T., Fraser, I., & Ussher, J. (2021). “Extreme emotions”- The impact of reproductive life events for women living with bipolar disorder. Health Care for Women International, 1-14. https://doi.org/10.1080/07399332.2021.1884683
Pompili, M., Gonda, X., Serafini, G., Innamorati, M., Sher, L., Amore, M., Rihmer, Z., & Girardi, P. (2013). Epidemiology of suicide in bipolar disorders: a systematic review of the literature. Bipolar Disorders, 15(5), 457-490. https://doi.org/10.1111/bdi.12087.
Richard-Lepouriel, H., Favre, S., Jermann, F., & Aubry, J. M. (2020). Self-destigmatization process? Experiences of persons living with bipolar disorder: A qualitative study. Community Mental Health Journal, 56(6), 1160-1169. https://doi.org/10.1007/s10597-020-00614-7
Smyth, K., Salloum, A., & Herring, J. (2021). Interpersonal functioning, support, and change in early-onset bipolar disorder: A transcendental phenomenological study of emerging adults. Journal of Mental Health, 30(1), 121-128. https://doi.org/10.1080/09638237.2020.1713997
Tse, S., Yuen, W. W., Murray, G., Davidson, L., Lai, Q., & Kan, A. (2019). Combining technical and expert-by-experience knowledge in the quest for personal recovery from bipolar disorder: A qualitative study. BMC Psychiatry, 19(1), 1-12. https://doi.org/10.1186/s12888-019-2357-3.
Tyler, E., Lobban, F., Long, R., & Jones, S. H. (2021). Developing a recovery-focused therapy for older people with bipolar disorder: A qualitative focus group study. BMJ Open, 11(8). https://doi.org/10.1136/bmjopen-2021-049829.
Wah, A., Hodge, S., Jones, S. H., & Algorta, G. P. (2021). A qualitative exploration of how people with bipolar disorder consider risk-taking in everyday decisions. Behavioural and Cognitive Psychotherapy, 49(3), 314-327. https://doi.org/10.1017/S1352465820000946..
Warwick, H., Tai, S., & Mansell, W. (2019). Living the life you want following a diagnosis of bipolar disorder: A grounded theory approach. Clinical Psychology & Psychotherapy, 26(3), 362-377. https://doi.org/10.1002/cpp.2358
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