Demands of children with special health care needs in primary care in Rio de Janeiro
DOI:
https://doi.org/10.4025/ciencuidsaude.v19i0.50479Keywords:
Health Services Accessibility; Caregivers; Pediatric Nursing; Primary Health CareAbstract
Objective: To analyze the demands of children with special health care needs, which implied some changes in the way of taking care at home. Method: Descriptive research implemented with data from Children with Special Health Care Needs Screener© - Brazilian version, integrated with the tri-centric study (Santa Maria – RS, Rio de Janeiro-RJ, and Ribeirão Preto – SP). We interviewed 589 families of children under 12 years old in 12 primary health care units. Data were treated with descriptive statistics. Results: According to the domain of special needs, the children's prevalence was 12,4%, being the chronic respiratory and cutaneous diseases the most predominant. In this group, 63% self-declared black and brown skin and 37% white color; 35,6% received benefits from programs of cash transfer (Bolsa Família Programme and Continuous Cash Benefit); 20,5% would live in a community wherein garbage and sewage were discarded at an open-air, with untreated water. Conclusion: The social conditions of vulnerabilities were added to the clinical one, affecting the way those children were taken care of at home. Knowledge regarding the needs, living conditions, care, and access demands can help restructure services and primary health care welcoming.
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References
2. Cabral IE, Silva JJ, Zillmann DO, Moraes JR, Rodrigues EC. A criança egressa da terapia intensiva na luta pela sobrevida. Rev. Bras. Enferm. 2004. 57(1):35-39. doi: http://dx.doi.org/10.1590/S0034-71672004000100007
3. McPherson M, Arango P, Fox H, Lauver C, McManus M, Newacheck PW, et al. A new definition of children with special health care needs. Pediatrics. 1998; jul; 102 (1): 137-140. doi: https://doi.org/10.1542/peds.102.1.137
4. Cabral IE, Moraes JRMM. Family caregivers articulating the social network of a child with special health care needs. Rev. Bras. Enferm. 2015. 68 (6): 1078-1085. doi: http://dx.doi.org/10.1590/0034-7167.2015680612i
5. Carlos JCF, Macarena LC, Zamora NR, Anguita MEA, Paz MGL, Salesa BY, et al. Modelo de atención y clasificación de «Niños y adolescentes com necessidades especiales de atención em salud-NANEAS»: recomendacion es del Comité NANEAS de la Sociedad Chilena de Pediatría. Rev. Chil. Pediatr. 2016;87(3): 224-232. doi: http://dx.doi.org/10.1016/j.rchipe.2016.03.005
6. Reichert APS, Leônico ABA, Toso BRG, Santos NCCB, Vaz EMC, Collet N. Family and community orientation in children’s primary healthcare. Ciênc. Saúde Coletiva. 2016; 21(1) 119-127. doi:https://doi.org/10.1590/1413-81232015211.05682014
7. The National Survey of Children with special health care needs. Chartbook 2009-2010. Department of Health and Human Services Health Resources and Services Administration[Internet]. 2013. Available from: https://mchb.hrsa.gov/cshcn0910/more/pdf/nscshcn0910.pdf
8. Arrué AM, Neves ET, Magnago TSBS, Cabral IE, Gama SGN, Hökerberg YHM. Tradução e adaptação do Children with Special Health Care Needs Screener para português do Brasil. Cad. Saúde Pública. 2016; 32(6): e00130215. doi: http://dx.doi.org/10.1590/0102-311X00130215
9. Rossetto V, Toso BRGO, Rodrigues RM, Viera CS, Neves ET. Development care for children with special health needs in home careat Paraná – Brazil.Esc. Anna Nery Rev. Enferm. 2019. 23(1): e20180067. doi: http://dx.doi.org/10.1590/2177-9465-ean-2018-0067
10. Silva DCM, Reichert APS, Nóbrega VM, Dantas MSA, Gomes GLL, Macedo JQ, et al. Difficulties in a Father’s Day-to-Day Care of a Childwith A ChronicIllness. InternationalArchivesof Medicine. 2016; 9 (143): 9p. doi: http://dx.doi.org/10.3823/2014
11. Lima JG, Giovanella L, Fausto MCR, Bousquat A, Silva EV. Atributos essenciais da Atenção Primária à Saúde: resultados nacionais do PMAQ-AB. Saúde debate. 2018;42(spe):52-66. doi: http://dx.doi.org/10.1590/0103-11042018s104
12. Cecilio LCO, Matsumoto NF. Uma taxonomia operacional de necessidades de saúde. In: Pinheiro R, Ferla AF, Mattos R. A (orgs.). Gestão em Redes: tecendo os fios da integralidade em saúde. EdUCS/UFRS: IMS/UERJ: CEPESC[Internet]. 2006[acesso em 2018 fev]. Disponível em: https://lappis.org.br/site/gestao-em-redes-tecendo-os-fios-da-integralidade-em-saude/4503
13. Pinto MMPS, Coutinho SED, Collet N. Chronicillness in childhood and attention from health services. Cien Cuid Saude. 2016;15(3):498-506. doi: https://doi.org/10.4025/cienccuidsaude.v15i3.28575
14. Damasceno SS, Nóbrega VM, Coutinho SED, Reichert APS, Toso BRGO, Collet N. Children's Health in Brazil: orienting basic network to Primary Health Care. Ciênc. Saúde coletiva. 2016. 21(9): 2961-2973. doi: http://dx.doi.org/10.1590/1413-81232015219.25002015
15. Alter G, Gonzalez R. Responsible practices for data sharing. AmPsychol. 2018;73(2):146-156. doi: 10.1037/amp0000258
16. Neves ET. Crianças com necessidades especiais de saúde em serviço de atenção básica em saúde: prevalência e acesso. Relatório Técnico CNPq. Edital MCTI/CNPq nº 2014 – Chamada Universal. 2018, 83 p. (Impr).
17. SAGE - Sala de Apoio à Saúde Estratégica [Internet]. 2018[acesso em 2018 fev]. Disponível em: http://sage.saude.gov.br/#
18. Petruccelli JL, Saboia AL. Características étnico-raciais da população. Classificações e Identidades. Editora IBGE [Internet]. 2013[acesso em 2018 fev]. Disponível em: https://biblioteca.ibge.gov.br/visualizacao/livros/liv63405.pdf
19. Santos ILF, Gaíva MAM, Abud SM, Ferreira SMB. Child hospitalization due to primary care sensitive conditions. Cogitare Enferm. 2015;20(22);169-177. doi: http://dx.doi.org/10.5380/ce.v20i1.37586
20. Reis KMN, Alves GV, Barbosa TA, Lomba GO, Braga PP. A viveÌ‚ncia da família no cuidado domiciliar aÌ€ criança com necessidades especiais de sauÌde. CIENCIA Y ENFERMERIA XXIII[Internet]. 2017; [acesso em 2018 fev](1): 45-55. Disponível em: https://pdfs.semanticscholar.org/73df/6404079cc327dc20ed8f0d2b982507213cd9.pdf
21. Moreira MCN, Albernaz LV, Sá MRC, Correia RF, Tanabe RF. Recomendações para uma linha de cuidados para crianças e adolescentes com condições crônicas complexas de saúde. Cad. Saúde Pública. 2017; 33(11):e00189516. doi: http://dx.doi.org/10.1590/0102-311X00189516
22. Góes FGB; Cabral IE. Discoursesondischargecare for childrenwithspecialhealthcareneeds. Rev. Bras. Enferm. 2017; 70 (1): 163-171. doi: http://dx.doi.org/10.1590/0034-7167-2016-0248
23. Dias BC, Arruda GO, Marcon SS. Vulnerabilidade familiar de crianças com necessidades especiais de cuidados múltiplos, complexos e contínuos. REME – Rev. Min. Enferm. 2017; 21:e-1027. doi: http://www.dx.doi.org/10.5935/1415-2762.20170037
24. Figueiredo SV, Sousa ACC, Gomes ILV. Children with special health needs and family: implications for Nursing. Rev. Bras. Enferm. 2016. 69(1):79-85. doi: http://dx.doi.org/10.1590/0034-7167.2016690112i
25. Gomes MFP; Fracolli LA; Machado BC. Atenção domiciliar do enfermeiro na estratégia de saúde da família. O Mundo da Saúde. 2015; 39 (4): 470-475. doi: http://dx.doi.org/10.15343/0104-7809.20153904470475








