Perceived stress in mothers of children with special health care needs, and related sociodemographic factors
DOI:
https://doi.org/10.4025/ciencuidsaude.v22i0.65793Keywords:
Nursing, Children, People with disabilities, Mothers, StressAbstract
Objective: to analyze stress among mothers of children with special health care needs and identify related sociodemographic factors. Method: cross-sectional study with a quantitative approach and involving mothers of children with special health care needs being followed up in a medium-complexity outpatient clinic that carries out rehabilitation activities for children with conditions that affect their neuromotor and sensory development, in a city in the state from Sao Paulo. Data collection took place remotely, between March and July 2021, through application, via Google Forms, of a sociodemographic characterization instrument and the Perceived Stress Scale, whose score ranges from zero to 56 points. For data analysis, the following statistical tests were used: Mann-Whitney, Kruskal-Wallis, Spearman’s correlation, and simple and multiple linear regression. Results: 57 mothers with an average age of 34.4 years participated. The average level of perceived stress stood at 30.56 – minimum 12, maximum 52. The sociodemographic factors associated with stress were: maternal age (p<0.001), marital status (p<0.001), and number of children (p=0.019). Conclusion: the mothers with the highest level of perceived stress were: the youngest, those without a partner, and those with the highest number of children.
Downloads
References
2. Dias BC, Marcon SS, Reis P, Lino IGT, Okido ACC, Ichisato SMT, et al. Family dynamics and social network offamiliesofchildrenwithspecialneeds for complex/continuouscares. Rev Gaúcha Enferm. 2020;41:e20190178. DOI: https://doi.org/10.1590/1983-1447.2020.20190178
3. Passos dos Santos R, Gais Severo VR, Kegler JJ, BigolinJantsch L, Cordeiro D, Tatsch Neves E. Characterizationofchildrenwithspecialhealthcareneedsandcaregivers in a teaching hospital. CiencCuid Saude.2020; 19: e 0.46724. DOI: https://doi.org/10.4025/ciencuidsaude.v19i0.46724
4. Baldini PR, Lima BJ, Pina JC, Okido ACC. Mothersofchildrenthatneedcontinuousandcomplexcare: Factorsassociatedwith social support. Esc Anna Nery. 2021;25(3):e20200254. DOI: https://doi.org/10.1590/2177-9465-EAN-2020-0254
5. Pinquart M. Parenting stress in caregivers of children with chronic physical condition—A metaâ€analysis. Stress health.2018; 34(2):197-207. DOI:https://doi.org/10.1002/smi.2780
6. Foronda Cl, Kelley CN, Nadeau C, Prather SL, Lewis-Pierre L, Sarik DA, et al. Psychological and socioeconomic burdens faced by family caregivers of children with asthma: an integrative review. J Pediatr Health Care.2020; 34(4): 366-376. DOI: https://doi.org/10.1016/j.pedhc.2020.02.003
7. Lopes-Júnior LC, Lima RAG, Zonta JB, Sulino MC, Looman WS, Correa LM, et al. Biomarkers of stress in caregivers of children with special health care needs: A protocol for systematic review. Medicine. 2022; 101(44): e31448. DOI: https://doi.org/10.1097/MD.0000000000031448
8. Vasconcelos AG, Nascimento E. Teoria Motivacional do Coping: um modelo hierárquico e desenvolvimental. Aval Psicol. 2016; 15: 77-87. DOI:
https://doi.org/10.15689/ap.2016.15ee.08
9. Toledano-Toledano F, Domínguez-Guedea MT. Psychosocialfactorsrelatedwithcaregiverburdenamongfamiliesofchildrenwithchronicconditions. BioPsychoSocial Med.2019; 13(6): 1-9. DOI: https://doi.org/10.1186/s13030-019-0147-2
10. Luft CDB, Sanches SO, Mazo GZ, Andrade A. Versão brasileira da Escala de Estresse Percebido: Tradução e validação para idosos. RevSaude Publica.2007; 41(4):606-615. DOI: https://doi.org/10.1590/S0034-89102007000400015
11. Silva JS, Moraes OF, Sabin LD, Almeida FO, Magnago TSBS. Resilience of family caregivers of children and adolescents in treatment of neoplasms and associated factors. RevBras Enferm.2021;74(6):e20190388. DOI: https://doi.org/10.1590/0034-7167-2019-0388
12. Yilmaz G. Motherswithdisabledchildren: needs, stress levelsandfamilyfunctionality in rehabilitation. Scand J CaringSci. 2020; 34(2), 524-5 DOI: https://doi.org/10.1111/scs.12783
13. El-Monshed AH, Amr M. Perceived stress amongmothersofchildrenwithautismspectrumdisorder in Egypt. AdvAutism. 2021. 7(4), 335-344.DOI: https://doi.org/10.1108/AIA-02-2020-0014
14. Dias BC, Arruda GO, Marcon SS. Vulnerabilidade familiar de crianças com necessidades especiais de cuidados múltiplos, complexos e contínuos. Rev Min Enferm.2017; 21:e-1027. DOI: https://doi.org/10.5935/1415-2762.20170037
15. Savari K, Naseri M, Savari Y. Evaluatingthe role ofperceived stress, social support, andresilience in predictingthequalityoflifeamongtheparentsofdisabledchildren. Intl J DisabilDev Educ.2023; 70(5): 644-658.DOI: https://doi.org/10.1080/1034912X.2021.1901862
16. van Tilburg MAL, Edlynn E, Maddaloni M, van Kempen K, Díaz-González de Ferris M, Thomas J. High levels of stress due to the SARS-CoV-2 pandemic among parents of children with and without chronic conditions across the USA. Children.2020; 7(10): 193. DOI: https://doi.org/10.3390/children7100193
17. Souza RR, Marquete VF, de Lima Vieira VC, Fischer MJB, Spigolon DN, Marcon SS. Cuidado domiciliar à criança e ao adolescente com diabetes mellitus tipo 1 na perspectiva do cuidador. RevEnferm UERJ.2020; 28: e46013. DOI: https://doi.org/10.12957/reuerj.2020.46013
18. Baldini PR, Lima BJ, Camilo BHN, Pina JC, Okido ACC. Effect of parental mutuality on the quality of life of mothers of children with special health needs. RevLatAm Enfermagem.2021;29:e3423. DOI:http://dx.doi.org/10.1590/1518-8345.4385.3423








