Care for the institutionalized elderly in the perspective of a peaceful end of life
Abstract
Objective: to understand how care at the end of life is provided to the elderly in the Long Stay Institution for the Elderly (LSIE) from the perspective of the Peaceful End of Life Theory. Method: descriptive, interpretative study of a qualitative clinical nature, conducted with 12 collaborators of a Long Stay Institution for the Elderly in a city in the Northeast of Brazil. Data were collected in May and June 2021. They were organized with the help of IRaMuTeQ software and analyzed according to the Peaceful End of Life Theory. Results: two categories emerged: family support, lack of knowledge and fear of the team and their implications for the care of the elderly at the end of life and care for the promotion of comfort to the elderly at the end of life. Final considerations: pain control and physical comfort were more present on the care at the end of life in the LSIE, highlighting the need for greater investment in the permanent education of the caregiver team so that they can provide care to the elderly and their families, especially regarding autonomy and the preparation of mourning. The study allows us to understand how professional care is provided at the end of life of the elderly in a Long Stay Institution for the Elderly.
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References
Simões ASL. End of life care in nursing homes. Systematic Literature Review. Pensar Enfermagem. 2013 [acesso em: 13 abr. 2022];17(1): 31–61. Available from:https://www.researchgate.net/publication/320165635_End_of_Life_Care_in_Nursing_Homes_Systematic_Literature_Review#fullTextFileContent.
Tavares PN, Araújo OSCC, Mello JF, Maciel ANF, D’elboux MJ. Instituições de Longa Permanência para Idosos no Brasil.: revisão integrativa da literatura. Rev. kairós. 2018; 21(3): 423-441. Doi: https://doi.org/10.23925/2176-901X.2018v21i3p423-441
International Association for Hospice and Palliative Care (IAHPC). Global consensus based palliative care definition. Houston, TX: The International Association for Hospice and palliative care; 2019. [Acesso em: 17 de mar. de 2022]. Available from: https://hospicecare.com/what-we-do/projects/consensus-based-definition-of-palliative-care/.
Organização das Nações Unidas. First ever global atlas identifies unmet need for palliative care. Organização mundial de saúde, 2014 [acesso em: 15 mai. 2022]. Available from: https://www.longwoods.com/worldnewsdetail/3836.
Badillo TD, González BCS, Quevedo JEC, Alejo EJS, Sanchez GG, Cortés PLH. Sensory and cognitive functions, gait ability and functionality of older adults. Rev. Latino-Am. Enfermagem. 2020; 28. Doi: https://doi.org/10.1590/1518-8345.3499.3282.
Poltronieri BC, Souza ER, Ribeiro AP. Violence in long-term care facilities for the elderly in Rio de Janeiro, Brazil: perceptions of managers and professionals. Saúde Soc. 2019; 28(2): 215-26. Doi: https://doi.org/10.1590/S0104-12902019180202.
Rosa VPP, Urbanetto JS. Perfil sociodemográfico e clínico e sua associação com o grau de dependência em idosos institucionalizados. Estud. Interdiscip. Envelhec. 2021; 27(3): 315-333. Doi: https://doi.org/10.22456/2316-2171.104973
Simões A, Sapeta P. Promoção da dignidade no final da vida: um estudo de grounded theory num lar de idosos. Cuidados Paliativos. 2018 [acesso em: 16 mai. 2022]; 5(1): 76–83. Available from: https://repositorio.ipcb.pt/handle/10400.11/6161
Polisaitis AEG. Cuidados pós-agudos: Como estão inseridas nas políticas de saúde brasileira as instituições de longa permanência para idosos (ILPIs) e as clínicas de retaguarda? [Dissertação]. São Paulo: Escola de Administração de Empresas de São Paulo. 2018. Availabre from: https://bibliotecadigital.fgv.br/dspace/bitstream/handle/10438/24065/TA.Ariane.Polisaitis.VF.pdf?sequence=1&isAllowed=y
Ruland CM, Moore SM. Theory Construction Based on Standards of Care: A Proposed Theory of the Peaceful End of Life. Nurs. Outl. 1998; 46(4): 169-75. Doi: https://doi.org/10.1016/s0029-6554(98)90069-0
Menezes TMO, Silva VM, Silva DES. Cuidados paliativos em instituição de longa permanência frente à pandemia da covid-19: reflexões a partir da teoria do final de vida pacífico. In: Santana RF. Enfermagem gerontologica no cuidado do idoso em tempos da COVID 19. 2.ed.rev. Brasilia, DF: Editora ABEn; 2020. 29-34. Doi: https://doi.org/10.51234/aben.20.e01.c05
Camarano AA, Kanso S, Fernandes D. Brasil envelhece antes e pós PNI. In: Alcantara AO, Camarano AA, Giacomin CK. (org). Política Nacional do Idoso: velhas e novas questões. Rio de Janeiro: IPEA. 2016.
Faria-Schutzer DB, Surita FG, Alves VLP, Bastos RA, Campos CJG, Turato ER. Seven steps for qualitative treatment in health research: the Clinical-Qualitative Content Analysis. Ciênc. Saúde Colet. 2021; 26(1): 265-274. Doi: https://doi.org/10.1590/1413-81232020261.07622019
Souza VR, Marziale MH, Silva GT, Nascimento PL. Translation and validation into Brazilian Portuguese and assessment of the COREQ checklist. Acta Paul. Enferm. 2021;34:eAPE02631. Doi: https://doi.org/10.37689/acta-ape/2021AO02631.
Camargo BV, Justo AM. Tutorial para uso do software IRaMuTeQ. 2021. Available from: http://www.iramuteq.org/documentation/fichiers/Tutorial%20IRaMuTeQ%20em%20portugues_22.11.2021.pdf.
Schneider AS, Ludwig MCF, Neis M, Ferreira AM, Issi HB. Percepções e vivencias da equipe de enfermagem frente ao paciente pediátrico em cuidados paliativos. Ciênc., Cuid. Saúde. 2020; 19:e41789. Doi:
https://doi.org/10.4025/cienccuidsaude.v19i0.41789.
Crepaldi MA, Schmidt B, Noal DS, Bolze ADA, Gabarra LM. Terminalidade, morte e luto na pandemia de COVID-19: demandas psicológicas emergentes e implicações práticas. Estud. Psicol. 2020. Doi: https://doi.org/10.1590/1982-0275202037e200090.
Prado RT, Leite JL, Castro EAB, Silva LJ, Silva IR. Uncovering care for patients in the death/ dying process and their families. Rev. Gaúch. Enferm. 2018; 39:e2017-0011. Doi: https://doi.org/10.1590/1983-1447.2018.2017-0111.
Conselho Federal de Enfermagem. Resolução 564/2017. 2017. Available from: http://www.coren-es.org.br/codigo-de-etica.
Conselho Regional de Enfermagem de São Paulo. Câmara Técnica: Orientação Fundamentada nº 21/2014 revisada em fevereiro de 2017. 2017. Availabre from: https://portal.coren-sp.gov.br/wp-content/uploads/2017/11/Orientac%CC%A7a%CC%83o-Fundamentada-021-de-2014.pdf.
Conselho Federal de Medicina. Resolução 1.995, de 31 de agosto de 2012. Available from: https://www.legisweb.com.br/legislacao/?id=244750
Medeiros MOSF, Meira MV, Fraga FMR, Sobrinho CLN, Rosa DOS, Silva RS. Bioethical conflicts in end of life care. Rev. Bioét. 28(1), 2020. Doi: https://doi.org/10.1590/1983-80422020281375.
Paranhos DGAM, Albuquerque A. A autonomia do paciente Idoso no contexto dos cuidados em saúde e seu aspecto relacional. Rev. Direito Sanit. 2018; 19(1): 32- 49. Doi: https://doi.org/10.11606/issn.2316-9044.v19i1p32-49.
Zaccara AAL, Batista PSS, Vasconcelos MF, Dias KCCO, Aguiar PKF, Costa SFG. Contributions of the theory of the peaceful end of life to the nursing care for patients under palliative care. R. pesq.: cuid. fundam. Online. 2020; 1247-52. Doi: https://doi.org/10.9789/2175-5361.rpcfo.v12. 9558.
Cano CWA, Silva ALC, Barboza AF, Bazzo BF, Martins CP, Júnior Iandoli D, et al. End of life: conceptual understanding of euthanasia, dysthanasia and orthothanasia. Rev. Bioét. 2020; 28(2). Doi: https://doi.org/10.1590/1983-80422020282399.
Eliopoulos C. Enfermagem Gerontológica. Cuidados no Final da Vida. Porto Alegre: Artmed, 9ª Ed. 2019; 514-27.
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