“What will I be a mother now?”: women with physical disabilities and their vulnerabilities during pregnancy
Abstract
Objective: to know the experiences of women with physical disabilities and their vulnerabilities during pregnancy. Method: qualitative study with a social-historical approach, carried out by the technique of oral history of life with 15 women with physical disabilities. Data collection occurred in the period from July to December 2020. The thematic content analysis was performed with the help of the Atlas.ti® 9 software, from January to October 2021, guided by the theoretical framework of vulnerability. Results: the vulnerabilities of women with physical disabilities during pregnancy oscillate according to their clinical, psychological, and social conditions. Thus, fear, emotion, anxiety, overcoming, physical limitation, gestational risk, prejudice, social stigmas, and the importance of the support network are highlighted. Final considerations: the less access to social and reproductive rights, and the less support network involved in this period, the greater vulnerability faced during pregnancy and the exercise of motherhood.
Downloads
References
Maffei B, Menezes M, Crepaldi MA. Rede social significativa no processo gestacional: uma revisão integrativa. Rev. SBPH [Internet]. 14 jan 2019 [citado 20 de mai de 2022];22(1):216-37. DOI: https://doi.org/10.57167/Rev-SBPH.22.186
United Nations. Convention on the Rights of Persons with Disabilities (CRPD) and Optional Protocol. 2006. Nairóbi, Quênia: United Nations, 2006. https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities/convention-on-the-rights-of-persons-with-disabilities-2.html
Ganle JK, Apolot RR, Rugoho T, Sumankuuro J. ‘They are my future’: childbearing desires and motivations among women with disabilities in Ghana - implications for reproductive healthcare. Reprod Health [Internet]. 6 out 2020 [cited may 22, 2022];17(1). DOI: https://doi.org/10.1186/s12978-020-01000-y
Nguyen TV, Edwards N, King J. Maternal healthcare for women with physical disabilities in Northern Vietnam: perspectives of healthcare providers. Disabil Health J. 2023 Apr;16(2):101439. [cited jun 10, 2023];DOI: 10.1016/j.dhjo.2023.101439.
Devkota HR, Kett M, Groce N. Societal attitude and behaviours towards women with disabilities in rural Nepal: pregnancy, childbirth and motherhood. BMC Pregnancy Childbirth [Internet]. 9 jan 2019 [cited 21 abr 2023];19(1). DOI: https://doi.org/10.1186/s12884-019-2171-4
Santos LF, Janini JP, Souza VD, Santos RD. Transition to motherhood and mothering for women in wheelchairs: a nursing perspective. Rev Bras Enferm [Internet]. Dez 2019 [cited 25 mar 2022];72(suppl 3):290-6. DOI: https://doi.org/10.1590/0034-7167-2018-0843
Ayres JR, Paiva V, França Júnior I. Conceitos e práticas de prevenção: da história natural da doença ao quadro da vulnerabilidade e direitos humanos. In: Paiva V, Ayres JR, Buchalla CM (Org.). Vulnerabilidade e direitos humanos: prevenção e promoção da saúde: da doença à cidadania. Curitiba: Juruá, 2012. p. 43-94.
Padilha MI et al. The use of sources in historical research. Texto Contexto Enferm;26(4):01-10, 2017. [cited 25 mar 2022] DOI: https://doi.org/10.1590/0104-07072017002760017
Bosi,MLM, Gastaldo, D. Tópicos Avançados em Pesquisa Qualitativa em Saúde: Fundamentos Teórico-metodológicos. Petrópolis: Vozes, 2021. 343 p.
Costa, AP, Minayo, MCS. Buiding criteria to evaluate qualitative research Papers: a tool for peer reviewers. Rev. Escola de Enfermagem da USP, 2019, 53, e03448. DOI: https://doi.org/a0.1590/S1980-220X201804 1403448
Schwantes NO, Rogério RD, Lourenço LD, Souza WG, Valcarenghi RV. A percepção da puérpera sobre os cuidados recebidos pela sua rede de apoio. Glob Clin Res J [Internet]. 2021 [citado 25 mai 2022];1(1). DOI: https://doi.org/10.5935/2763-8847.20210004
Nguyen TV, King J, Edwards N, Dunne MP. “Nothing suitable for us”: experiences of women with physical disabilities in accessing maternal healthcare services in Northern Vietnam. Disabil Rehabil [Internet]. 11 jun 2020 [cited 24 abr 2022]:1-9. DOI: https://doi.org/10.1080/09638288.2020.1773548
Crisostomo KN, Grossi FR, Souza RD. As Representações Sociais da Maternidade para Mães de Filhos(as) com Deficiência. Rev Psicol Saude [Internet]. 9 out 2019 [cited 24 abr 2022]:79-96. DOI: https://doi.org/10.20435/pssa.v0i0.608
O'Connor-Terry C, Harris J. Pregnancy decision-making in women with physical disabilities. Disabil Health J [Internet]. Jul 2021 [cited 20 may 2022]:101176. DOI: https://doi.org/10.1016/j.dhjo.2021.101176
Tarasoff LA, Murtaza F, Carty A, Salaeva D, Hamilton AD, Brown HK. Health of Newborns and Infants Born to Women With Disabilities: A Meta-analysis. Pediatrics [Internet]. 17 nov 2020 [cited 20 may 2022];146(6):e20201635. DOI: https://doi.org/10.1542/peds.2020-1635
Tefera B, Van Engen M, Van der Klink J, Schippers A. The grace of motherhood: disabled women contending with societal denial of intimacy, pregnancy, and motherhood in Ethiopia. Disabil Amp Soc [Internet]. 7 set 2017 [cited 20 may 2022];32(10):1510-33. DOI: https://doi.org/10.1080/09687599.2017.1361385
Correa VD, Jurdi AP, Silva CC. Mães com Deficiência e Maternidade: Cotidiano, Redes de Apoio e Relação com a Escola. Rev Bras Educ Espec [Internet]. 2022 [citado 23 abr 2023];28. DOI: https://doi.org/10.1590/1980-54702022v28e0159
Walker LO, Becker H, Andrews EE, Phillips CS. Adapting a health behavioral change and psychosocial toolkit to the context of physical disabilities: Lessons learned from disabled women with young children. Disabil Health J [Internet]. Jan 2021 [cited 23 abr 2023];14(1):100977. DOI: https://doi.org/10.1016/j.dhjo.2020.100977
Brown HK, Chen S, Guttmann A, Havercamp SM, Parish S, Ray JG, Tarasoff LA, Vigod SN, Carty A, Lunsky Y. Rates of recognized pregnancy in women with disabilities in Ontario, Canada. Am J Obstet Gynecol [Internet]. Fev 2020 [cited 20 may 2022];222(2):189-92. DOI: https://doi.org/10.1016/j.ajog.2019.10.096
Benatti AP, Pereira CR, Santos DC, Paiva IL. A maternidade em contextos de vulnerabilidade social: papéis e significados atribuídos por pais e mães. Interacao Em Psicol [Internet]. 20 ago 2020 [citado 23 abr 2023];24(2). DOI: https://doi.org/10.5380/psi.v24i2.59856
Powell RM, Mitra M, Smeltzer SC, Long‐Bellil LM, Smith LD, Rosenthal E, Iezzoni LI. Adaptive parenting strategies used by mothers with physical disabilities caring for infants and toddlers. Health Amp Soc Care Community [Internet]. 16 dez 2018 [cited 20 may 2022];27(4):889-98. DOI: https://doi.org/10.1111/hsc.12706
Gleason JL, Grewal J, Chen Z, Cernich AN, Grantz KL. Risk of Adverse Maternal Outcomes in Pregnant Women With Disabilities. JAMA Netw Open [Internet]. 15 dez 2021 [cited 01 may 2022];4(12):e2138414. DOI: https://doi.org/10.1001/jamanetworkopen.2021.38414
Mitra M, Clements KM, Zhang J, Iezzoni LI, Smeltzer SC, Long-Bellil LM. Maternal Characteristics, Pregnancy Complications, and Adverse Birth Outcomes Among Women With Disabilities. Med Care [Internet]. Dez 2015 [cited 25 may 2022];53(12):1027-32. DOI em: https://doi.org/10.1097/mlr.0000000000000427
Bastos da Silva E, Bigolin Jantsch L, Cocco da Costa M, Do Carmo Jahn A. Características sociodemográficas, de trabalho e saúde de homens e mulheres deficientes residentes em contexto rural/ Sociodemographic characteristics of work and health of disabled men and women living in a rural setting. Cienc Cuid Saude [Internet]. 24 fev 2022 [cited 23 abr 2023];21. DOI: https://doi.org/10.4025/ciencuidsaude.v21i0.59527.
Copyright (c) 2023 Ciência, Cuidado e Saúde
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.
