Informal caregivers’ experience in role transition after dehospitalization

Keywords: Caregivers, Patient Discharge, Transitional Care, Nursing Care

Abstract

Objective: to understand the experiences of informal caregivers of dependent people in the role transition process after dehospitalization. Method: a descriptive, exploratory, qualitative study carried out with informal caregivers of dependent people who participated in a protocol of instrumentation for discharge. Data collection took place with 10 participants from southern Brazil, between July and August 2021, through interviews conducted at home. For data organization, we used IRAMUTEQ®. Analysis was anchored in the Transition Theory. Results: the results addressed the process of situational transition of informal caregivers, emerging three final classes: Class 1 - Difficulties in the daily care of dependent people; Class 2 – Meanings given to role transitions; and Class 3 – (Dis)continuity of care after hospital discharge. Final considerations: it was possible to understand that the experiences were permeated by inhibiting factors so that the meanings given to this experience were associated with the difficulties with the transition to the role of caregiver. Nurses played the role of facilitator in the situational transition process, by accompanying them, guiding them and enabling them to develop new skills.

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Author Biographies

Marianna Brisola Bernardi, Universidade Estadual de Maringá

Discente de Enfermagem. Universidade Estadual de Maringá. Maringá (UEM), PR, Brasil. 

Amanda de Souza Gonçalves, Universidade Estadual de Maringá

Enfermeira. Universidade Estadual de Maringá. Maringá, PR, Brasil.

Samira Goldberg Rego Barbosa, Universidade Estadual de Maringá

Enfermeira. Mestranda em Enfermagem. Universidade Estadual de Maringá. Maringá, PR, Brasil.

Suelen Cristina Zandonadi Bernal, Hospital Universitário de Maringá

Enfermeira. Mestre. Hospital Universitário de Maringá. Chefe de divisão internamento. Maringá, PR, Brasil.

Gabriel Mendes Plantier, Universidade do Oeste Paulista

Enfermeiro. Mestre. Docente de Enfermagem na Universidade do Oeste Paulista. Presidente Prudente, SP, Brasil.

Thamires Fernandes Cardoso da Silva Rodrigues, Universidade Estadual de Maringá

Enfermeira. Doutora em Enfermagem. Docente do Departamento de Enfermagem da Universidade Estadual de Maringá. Maringá, PR, Brasil.

Cremilde Aparecida Trindade Radovanovic, Universidade Estadual de Maringá

Enfermeira. Doutora em Ciências da Saúde. Docente de Enfermagem e do Programa de Pós-Graduação em Enfermagem da Universidade Estadual de Maringá. Maringá, PR, Brasil.

References

Moral-Fernández L, Frías-Osuna A, Moreno-Cámara S, Palomino-Moral PA, del-Pino-Casado R. Primeros momentos del cuidado: el proceso de convertirse en cuidador de un familiar mayor dependiente. Aten Primaria. 2018; 50(5): 282–90. DOI: 10.1016/j.aprim.2017.05.008

Slaboda JC, Nelson SH, Agha Z, Norman GJ. A national survey of caregiver’s own experiences and perceptions of U.S. health care system when addressing their health and caring for an older adult. BMC Health Serv Res. 2021; 21(1):101. DOI: 10.1186/s12913-021-06086-z.

Pozzoli SML, Cecílio LC de O. About caring and being cared for in home care. Saúde debate. 2017; 41(115):1116–29. DOI: 10.1590/0103-1104201711510

Weeks LE, Barber B, MacDougall ES, Macdonald M, Martin-Misener R, Warner G. An exploration of Canadian transitional care programs for older adults. Healthc Manage Forum. 2021 May; 34(3): 163–168. DOI: 10.1177/0840470420974040

Meleis AI. Transitions Theory: middlle-range and situation-specific theories in nursing research and practice/ Afaf Ibrahim Meleis [edited by]. Springer Publishing Company: New York, 2010.

Werner NE, Tong M, Borkenhagen A, Holden RJ. Performance-Shaping Factors Affecting Older Adults’ Hospital-to-Home Transition Success: A Systems Approach. The Gerontologist. 2019; 59(3):303–14. DOI: 10.1093/geront/gnx199

Rodrigues TFCS, Cardoso LCB, Rêgo AS, Silva ES, Elias MFAL, Radovanovic CAT. Educational intervention to increase the skill of informal caregivers: a quasi-experimental pilot study. Texto & contexto enferm. 2021; 30: e20200152. DOI: 10.1590/1980-265X-TCE-2020-0152

Cincura C, Pontes-Neto OM, Neville IS, Mendes HF, Menezes DF, Mariano DC, et al. Validation of the National Institutes of Health Stroke Scale, modified Rankin Scale and Barthel Index in Brazil: the role of cultural adaptation and structured interviewing. Cerebrovasc Dis. 2009; 27(2):119–22. DOI: 10.1159/000177918

Santos FGT, Sanches RCN, Bernardino E, Silva ES, Haddad MCFL, Gonçalves AS, et al. Psychometric properties of a questionnaire for assessing informal caregivers’ skills. Rev Enf Ref. 2021; 5(8): e20206. DOI: 10.12707/RV20206

Bardin L. Análise de conteúdo. Lisboa: Edições 70; 2016.

Souza MAR de, Wall ML, Thuler ACMC, Lowen IMV, Peres AM. O uso do software IRAMUTEQ na análise de dados em pesquisas qualitativas. Rev Esc Enferm USP. 2018; 52(0). DOI: 10.1590/S1980-220X2017015003353

Gómez MAH, Domínguez MJF, Ramos MAB, Pérez MTA, Domínguez MJF, Ramos AIS, et al. Depresión y sobrecarga en el cuidado de personas mayores. Rev Esp Salud Pública. [Internet] 2019 [Acesso em 01 jul 2022]; 93; e201908038. Disponível em: https://www.sanidad.gob.es/biblioPublic/publicaciones/recursos_propios/resp/revista_cdrom/VOL93/O_BREVES/RS93C_201908038.pdf

Mcewen M, Will EM, Thorell AM. Bases teóricas para enfermagem. São Paulo: Artmed; 2009.

Nah S, Martire LM, Zhaoyang R. Perceived Gratitude, Role Overload, and Mental Health Among Spousal Caregivers of Older Adults. J Gerontol B Psychol Sci Soc Sci. 2022 Feb; 77(2): 295–299.DOI: 10.1093/geronb/gbab086

Acosta AM, Câmara CE, Weber LAF, Fontenele RM. Nurse’s activities in care transition: realities and challenges. Rev enferm UFPE on line. 2018; 12(12): 3190. DOI: 10.5205/1981-8963-v12i12a231432p3190-3197-2018

Rajão FL, Martins M. Home Care in Brazil: an exploratory study on the construction process and service use in the Brazilian Health System. Cien Saude Colet. 2020; 25(5): 1863–77. DOI: 10.1590/1413-81232020255.34692019

Reis GFM, Soler ZASG, Jerico MC, Maloni AAS, Jericó PC, Jericó PPC. Patient profile and cost analysis of a public home care servisse. Cienc Cuid Saude.2021; 20: e589591. DOI: 10.4025/cienccuidsaude.v20i0.58959

Mantler T, Jackson KT, Baer J, White J, Ache B, Shillington K, et al. Changes in care- a systematic scoping review of transitions for children with medical complexities. Curr Pediatr Rev. 2020 Aug; 16(3): 165–175. DOI: 10.2174/1573396316666191218102734

Nikbakht-Nasrabadi A, Mardanian-Dehkordi L, Taleghani F. Abandonment at the Transition from Hospital to Home: Family Caregivers' Experiences. Ethiop J Health Sci. 2021 May; 31(3): 525–532. DOI: 10.4314/ejhs.v31i3.9

Published
2022-11-10
How to Cite
Bernardi, M. B., Gonçalves, A. de S., Barbosa, S. G. R., Bernal, S. C. Z., Plantier, G. M., Rodrigues, T. F. C. da S., & Radovanovic, C. A. T. (2022). Informal caregivers’ experience in role transition after dehospitalization. Ciência, Cuidado E Saúde, 21. https://doi.org/10.4025/ciencuidsaude.v21i0.61823
Section
Original articles