Parents' preparation for the dehospitalization of children using tracheostomy and gastrostomy
Abstract
Objective: to report the experience of an educational action for the preparation of parents for the dehospitalization of children using tracheostomy and gastrostomy. Method: experience report on an educational action, which is part of a Training Program of a public hospital of high complexity reference in pediatrics, from December 2017 to December 2018. Results: the preparation of those responsible for the dehospitalization of children using tracheostomy and gastrostomy was made from 5 stages: 1) Instructions to parents; 2) Training of parents to handle the device used by the child; 3) Manipulation of the devices by parents under the supervision of the nurse; 4) Feedback offered by Nursing; and 5) Evaluation of educational action. Final considerations: It is believed that the therapeutic education provided to those involved contributed to the qualification of care for children using tracheostomy and gastrostomy, favoring their quality of life and reducing home complications related to inadequate handling of the devices in question.
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References
Góes FGB, Cabral IE. Discourses on discharge care for children with special healthcare needs. Rev Bras Enferm. 2017; 70(1): 154-61. Doi: http://dx.doi.org/10.1590/0034-7167-2016-0248.
Rodrigues LN, Silva WCP, Santos AS, Chaves EMC. Child caregiver's experiences with gastrostomy. J Nurs UFPE. 2019; 13(3): 587-93. Doi: 10.5205/1981-8963.
Bossa PMA, Pacheco STA, Araújo BBM, Nunes MDR, Silva LF, Cardoso JMRM. Home care of children with tracheostomy. Rev. Enferm. UERJ. 2019; 27: e43335. Doi: http://dx.doi.org/10.12957/reuerj.2019.43335.
Zacarin CFL, Borges AA, Dupas G. The family’s experience of children and adolescents with gastrointestinal stomas. Ciênc., Cuid. Saúde. 2018; 17(2). Doi: 10.4025/cienccuidsaude.v17i2.41278.
Institute for Patient- Family-Centered Care. (2021). Available online at: https://www.ipfcc.org/ (accessed Mar 02, 2022).
Daltro MR, Faria AA. Relato de experiência: Uma narrativa científica na pós-modernidade. Estud. Pesqui. Psicol. 2019; 19(1): 223-37. Doi: https://doi.org/10.12957/epp.2019.43015.
Hospital Martagão Gesteira. (2022). Disponível em: https://martagaogesteira.com.br/o-martagao/ (acessado Mar 02, 2022).
Hospital Martagão Gesteira. Em 8 anos, unidade de treinamento para desospitalização (UTD) do Martagão conseguiu que 123 crianças com doenças crônicas retornassem para seus lares. (2020). Disponível em: https://martagaogesteira.com.br/noticia/em-8-anos-unidade-de-treinamento-para-desospitalizacao-utd-do-martagao-conseguiu-que-123-criancas-com-doencas-cronicas-retornassem-para-seus-lares/ (acessado Mar 02, 2022).
Fraga JC, Souza JC, Kruel J. Pediatric tracheostomy. J Pediatr. 2009; 85(2): 97-103. DOI: 10.2223/JPED.1850.
Khammas AH, Dawood MR. Timing of Tracheostomy in Intensive Care Unit Patients. Int. Arch. Otorhinolaryngol. 2018; 22(4): 437-42. Doi: https://doi.org/10.1055/s-0038-1654710.
Spito A, Cavaliere B. A Therapeutic Education Program for patients that underwent at temporary tracheotomy and total laryngectomy: leading to improved the “Diagnostic, Therapeutic and Assistance Path”. Acta Biomed. 2019; 90(Suppl 11): 38–52. Doi: 10.23750/abm.v90i11-S.8849.
Mai K, Davis RK, Hamilton S, Robertson-James C, Calaman S, Turchi RM. Identifying Caregiver Needs for Children With a Tracheostomy Living at Home. Clin. Pediatr. 2020; 59(13): 1169-81. Doi: https://doi.org/10.1177/0009922820941209.
Terp K, Weis J, Lundqvist P. Parents' Views of Family-Centered Care at a Pediatric Intensive Care Unit—A Qualitative Study. Front Pediatr. 2021; (9). Doi: https://doi.org/10.3389/fped.2021.725040.
Dykes F, Thomson G, Gardner C, Moran VH, Flackin R. Perceptions of European medical staff on the facilitators and barriers to physical closeness between parents and infants in neonatal units. Acta Paediatr. 2016; 105(9): 1039-46. Doi: https://doi.org/10.1111/apa.13417.
Wigert H, Blom MD, Bry K. Parents’ experiences of communication with neonatal intensive-care unit staff: an interview study. BMC Pediatr. 2014; 14: 304. Doi: 10.1186 / s12887-014-0304-5.
Aagaar H, Uhrenfeldt L, Spliid M, Fegran L. Parents' experiences of transition when their infants are discharged from the Neonatal Intensive Care Unit: a systematic review protocol. JBI Database Syst. Rev. Implement. Rep. 2015; 13(10): 123-32. Doi: 10.11124 / jbisrir-2015-2287.
Rodrigues LN, Silva AMO, Xavier MS, Chaves EMC. Complications and cares related to the use of the gastrostomy tube in pediatrics. Braz. J. Enterostomal Ther. 2018; 16: e1018. Doi: 10.30886/estima.v16.464.
Leite FLLM, Gomes GC, Minasi ASA, Nobre CMG, Oliveira SM, Severo DG. Criança com necessidades especiais de saúde: análise do cuidado prestado pela família. Rev Enferm Atenção saúde. 2019; 11(15): e1342. Doi: 10.25248/reas.e1342.2019.
Montes LG, Rodrigues CIS, Azevedo GR. Assessment of feedback for the teaching of nursing practice. Rev. Bras. Enferm. 2019; 72(3): 663-70. Doi: http://dx.doi.org/10.1590/0034-7167-2018-0539.
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