Support networks in the continuum rehabilitation process in the daily life of people with spinal cord injury

Keywords: Rehabilitation Nursing, Social Support, Spinal cord injury, Activities of Daily Living, Family Health

Abstract

Objective: to understand the support network in the continuum process of rehabilitation in the daily life of people with spinal cord injury. Methodology: a descriptive study of a qualitative nature, based on Comprehensive Sociology and Everyday Life, with 23 people with spinal cord injury, accompanied by a Nursing and Rehabilitation Service in southern Brazil. For data collection, we used the medical record, genogram, ecomap and individual interview. Content Analysis was used to analyze the interview. Results: when entering the Rehabilitation Program, the support networks were configured as a weak link when inaccessibility was a barrier, specifically, work/school; hobby/leisure. Strong bonds consider the main caregiver networks, health center, friends, religious orientation and family. Final thoughts: the support networks that surround each individual with spinal cord injury and the family and how they relate, help to cope with the new rhythm of life, collaborating to achieve the goals of rehabilitation and resocialization.

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Author Biographies

Thamyres Cristina da Silva Lima, Federal University of Santa Catarina

Nurse, Scientific Initiation Scholarship (PIBIC/CNPq). Nursing of Federal University of Santa Catarina (UFSC), Florianópolis-SC, Brazil. 

Adriana Dutra Tholl, Federal University of Santa Catarina

Nurse, Doctor in Nursing, Professor of the Graduation course in Nursing of Federal University of Santa Catarina (UFSC), Florianópolis-SC, Brazil. 

Rosane Gonçalves Nitschke, Federal University of Santa Catarina

Nurse, Doctor in Nursing, Professor of the Graduation course in Nursing of Federal University of Santa Catarina (UFSC), Florianópolis-SC, Brazil.

Selma Maria da Fonseca Viegas, Federal University of São João del-Rei

Nurse. Postdoctoral and Doctor in Nursing, Professor Federal University of São João del-Rei, Campus Center-West (UFSJ/CCO), Divinópolis-MG, Brazil. 

Danielle Alves da Cruz, Universidade Federal de Santa Catarina

Nursing. Graduate of Federal University of Santa Catarina (UFSC), Florianópolis-SC, Brazil.

Tamires Carolina Silva, Federal University of São João del-Rei

Nurse. Master in Nursing. Federal University of São João del-Rei, Campus Centro-Oeste (UFSJ/CCO), Divinópolis-MG, Brazil. 

References

Calicchio MGM, Paz KMR, Lemos PDL, Basilio ML, Cruz GVSF. Cronicidade: experiência de adoecimento e cuidado sob a ótica das ciências sociais. Ciênc. Saúde Colet. 2018; 23(2): 669-670. DOI: https://doi.org/10.1590/1413-81232018232.15062017.

Ruiz AGB, Barreto MS, Peruzzo HE, Schoeller SD, Decesaro MS, Marcon SS. Actions of the support network for people with spinal cord injury. Reme, rev. min. enferm. 2018; 22(e-116):1-9. DOI: http://dx.doi.org/10.5935/1415-2762.20180051.

Unger J, Singh H, Mansfield A, Hitzig SL, Lenton E, Musselman KE. The experiences of physical rehabilitation in individuals with spinal cord injuries: a qualitative thematic synthesis. Disabil Rehabil. 2019; 41(12):1367-1383. DOI: https://doi.org/10.1080/09638288.2018.1425745.

Tholl AD, Nitschke RG, Viegas SMF, Potrich T, Maques-Vieira C, Castro FFS. Strenghts and limits in the daily lifeof the adherence to rehabilitation of people with spinal cord injury and their families. Texto Contexto - enferm. 2020; 29: e20190003: 1-19. DOI: https://doi.org/10.1590/1980-265X-TCE-2019-0003.

Maffesoli M. O ritmo da vida: variações sobre o imaginário pós-moderno. Rio de Janeiro: Record; 2007.

Souza VRS, Marziale MHP, Silva GTR, Nascimento PL. Translation and validation into Brazilian Portuguese and assessment of the COREQ checklist. Acta Paul. Enferm. 2021; 34(s.n.): 1-9. DOI: https://doi.org/10.37689/acta-ape/2021AO02631.

Fontanella BJB, Ricas J, Turato ER. Amostragem por saturação em pesquisas qualitativas em saúde: contribuições teóricas. Cad. Saúde Pública. 2008; 24(1):17-27. DOI: https://doi.org/10.1590/S0102-311X2008000100003.

Bardin L. Análise de Conteúdo. Lisboa: Edições 70; 2011.

Maffesoli M. Quem é Michel Maffesoli: Entrevistas com Christophe Bourseiller; 2011.

World Health Organization. International perspectives on spinal cord injury. 11 de novembro de 2013 [Internet]. Geneva: World Health Organization; 2013. [citado 2021 jul 25]. Available in: https://apps.who.int/iris/handle/10665/94190.

Faleiros F, Marcossi M, Ribeiro O, Tholl A, Freitas G, Riberto M. Epidemiological profile of spinal cord injury in Brazil. J Spinal Cord Med. 2023 Jan; 46(1): 75-82. DOI: https://doi.org/10.1080/10790268.2021.1947679.

Calliga MCNS, Porto LA. Which people with traumatic paraplegia return to work? Ciênc. Saúde Colet. 2019; 24(6): 2341-2350. DOI: https://doi.org/10.1590/1413-81232018246.15682017.

Pizzeta GR, Maçaneiro CH, Miyamoto RK, Ferreira APB, Santos RAA. Epidemiological analysis of spinal cord injury in the city of Joinville (SC). Coluna/Columna, 2020; 19(1): 48-51. DOI: https://doi.org/10.1590/S1808-185120201901223272.

Maffesoli M. O conhecimento comum: compêndio de sociologia compreensiva. Tradução de Aluizo Ramos Trinta. São Paulo: Brasiliense; 2010.

Ferrer-Salvador CM. Social Inclusion of People with Disability: Pilot Study in the Workplace of the Mediating Role of Self-Determination between Role Conflict and Social Inclusion. Siglo Cero Revista Española Sobre Discapacidad Intelectual. 2020; 51(4):25-37. DOI: https://doi.org/10.14201/scero20205142537.

Tholl AD, Lima TCS, Nogueira SPBO, Faleiros F, Marques-Vieira C, Viegas SMF, et al. Labour market participation among rehabilitated individuals with spinal cord injury in Brazil: a cross-sectional study. Spinal Cord, 2023; 61(1): 119-124. DOI: https://doi.org/10.1038/s41393-022-00846-2.

Maffesoli M. O mistério da conjunção: ensaios sobre comunicação, corpo e socialidade. Porto Alegre: Sulina; 2005.

Neto TT, Fernandes LA, Texeira-Arroyo C, Oliveira EL. Autopercepção da qualidade de vida em lesionados medular: uma comparação entre praticantes e não praticantes de paradesporto. Rev. Assoc. Bras. Ativ. Mot. Adapt. 2019; 20(1): 29-38. DOI: https://doi.org/10.36311/2674-8681.2019.v20n1.03.p29.

Becerra MAG, Manzini MG, Martinez CMS. Perception of rugby athletes on wheelchairs on supports received for an adapted sport practice. Cad. Bras. Ter. Ocup. 2019; 27(3): 615-627. DOI: https://doi.org/10.4322/2526-8910.ctoAO1662.

Alve YA, Bontje P. Factors Influencing Participation in Daily Activities by Persons With Spinal Cord Injury: Lessons Learned From an International Scoping Review. Top. Spinal Cord Inj Rehabil. 2019; 25(1): 41-61. DOI: https://doi.org/10.1310/sci2501-41.

Anderson TJ, Nitschke RG. Tecnossocialidade no quotidiano da pós- modernidade sob a óptica da promoção da saúde. In: 6º Congresso Internacional em Saúde [Internet]; 2019 may 14-17; Rio Grande do Sul, RS. CiSaúde. 2019; 6. Disponível em: https://www.publicacoeseventos.unijui.edu.br/index.php/conintsau/article/view/11293.

Machado WCA, Pereira JS, Schoeller SD, Júlio LC, Martins MMFPS, Figueiredo NMA. Comprehensiveness in the care network regarding the care of the disabled person. Texto contexto - enferm. 2018; 27(3): 1-9. DOI: https://doi.org/10.1590/0104-07072018004480016.

Medeiros LSP, Pacheco RF, Medeiros MA, Correa L, Silva RM, Ventura J. Reference and counter-reference system between a specialized center for rehabilitation and primary health care. Research, Society and Development. 2021; 10(11): 1-21. DOI: https://doi.org/10.33448/rsd-v10i11.19959.

Amaral DC, Silva ABS, Ribeiro RM, Domenico EBL, Moreira RSL, Teraoka EC. Nursing interventions in the rehabilitation of people with neurogenic bowel: integrative review. Ciênc., Cuid. Saúde. 2022; 21:e61197: 1-9. DOI: https://doi.org/10.4025/ciencuidsaude.v21i0.61197.

Published
2023-04-26
How to Cite
Cristina da Silva Lima, T., Dutra Tholl, A., Gonçalves Nitschke, R., Maria da Fonseca Viegas, S., Alves da Cruz, D., & Carolina Silva, T. (2023). Support networks in the continuum rehabilitation process in the daily life of people with spinal cord injury. Ciência, Cuidado E Saúde, 22. https://doi.org/10.4025/ciencuidsaude.v22i0.65897
Section
Original articles