The impacts of acquired physical disability on functionality and quality of life: integrative review
Resumen
Aim: to analyze the evidence available in national and international scientific literature on the impact of acquired physical disability on functionality and quality of life. Material and methodology: integrative literature review based on the Minayo technique for discourse analysis of the results found. A search was conducted for articles published between 2017 and 2024, conducted by two independent researchers, in the Scientific Electronic Library Online (SciELO.org), Latin American and Caribbean Literature on Health Sciences (LILACS), Medical Literature Analysis and Retrieval System Online (MEDLINE/PubMed), SciVerse Scopus (Scopus) and Web of Science (WoS) databases. Results: the search in the databases began with 3,633 works. After applying the proposed eligibility criteria, 22 eligible studies were selected for the discussions. Conclusion: understanding the direct relationship between functionality and quality of life as an important factor for the real and effective inclusion of people with acquired physical disabilities in society implies studying all the conceptual determinants involved in this process, from the individual to the collective, and understanding the significant changes that are evident from the transition that happens, irreversibly and instantaneously, from the efficient body to the disabled body.
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Moreira MCN, Dias FS, Mello AG, York SW. Grammars of ableism: dialogues in the folds between disability, gender, childhood, and adolescence. Ciênc. Saúde Colet. 2022;27(10):3949-3958. DOI: https://doi.org/10.1590/1413-812320222710.07402022
Piccolo GM. Anthropological contributions to disability studies. Rev. Bras. Educ. Espec. 2022;28(e0099):105-120. DOI: https://doi.org/10.1590/1980-54702022v28e0099
Cardoso VD, Nicoletti LP, Haiachi MC. Impacts of the COVID-19 pandemic and the possibilities of physical and sports activities for people with disabilities. Rev. Bras. Ativ. Fis. Saúde. 2020;25:e0119. DOI: https://doi.org/10.12820/rbafs.25e0119
Mello AG, Aydos V, Schuch P. Cripping the anthropologies from disability mediations. Horiz. Antropol. 2022;28(64):7-29. DOI: https://doi.org/10.1590/S0104-71832022000300001
Chomen P, Kuwaki NS, Carraro CF, Gallo RBS, Israel VL. Construction and validation of an instrument for physical therapy assessment and functional classification in the biopsychosocial model of the International Classification of Functioning, Disability and Health (ICF) for hospitalized HIV patients. Fisioter. Pesqui. 2023;30:e21002523pt. DOI: https://doi.org/10.1590/1809-2950/e21002523pt
Barreto MCA, Andrade FG, Castaneda L, Castro SS. The International Classification of Functioning, Disability and Health (ICF) as a unifying dictionary of terms. Acta Fisiátr. 2021;28(3):207-213. DOI: https://doi.org/10.11606/issn.2317-0190.v28i3a188487
Pereira GS, Santos HM, Gonçalves TN, Brandão TCP, Fonseca Júnior PR, Silva SM. Use of the International Classification of Functioning, Disability and Health (ICF) in child health: a systematic review. Acta Fisiátr. 2022;29(1):56-66. DOI: https://doi.org/10.11606/issn.2317-0190.v29i1a173126
Costa RMPG, Mendes LCB. Quality of life of people with leprosy sequelae and self-care: an integrative review. Ciênc., Cuid. Saúde. 2020;19: e45649. DOI: https://doi.org/10.4025/ciencuidsaude.v19i0.45649
Zenevicz LT, Melo RCCP, Leo MF, Silva TG, Souza JB, Souza SS. Humanitude care strategies with older adults in portugal during the covid-19 pandemic. Ciênc., Cuid. Saúde. 2022;21:e59898. DOI: https://doi.org/10.4025/ciencuidsaude.v21i0.59898
Silva RR, Silva Filho JA, Lima ER, Belém JM, Pereira RS, Oliveira CAN. Woman-centered shared decision-making to promote contraceptive counseling: an integrative review. Rev. Bras. Enferm. 2022;75(5):e20210104. DOI: https://doi.org/10.1590/0034-7167-2021-0104.
Silva JOM, Santos LCO, Menezes AN, Lopes Neto A, Melo LS, Silva FJCP. Use of evidence-based practice by nurses in the Hospital service. Cogitare Enferm. 2021;26: v26:e67898. DOI: https://doi.org/10.5380/ce.v26i0.67898
Page MJ, Mckenzie JE, Bossuyt PM, Boutron I, Hoffmann TC, Mulrow CD et al. The PRISMA 2020 statement: An updated guideline for reporting systematic reviews. BMJ. 2021;372(71):1-9. DOI: https://doi.org/10.1136/bmj.n71
Uhmann SM, Schwengber MSV. Subjects with disabilities in the world of work: speeches that show appearances and, in turn, abilities. Rev. Educ. Espec. 2020;36:1-18. DOI: http://dx.doi.org/10.5902/1984686X32843
Estevam JA, Vianna DL, Fernandes SMS. Inclusion of disable people in the labor: cross-sectional study. Rev. Bras. Pesqui. Saúde. 2020;3(4):7766–7779. DOI: https://doi.org/10.34119/bjhrv3n4-046
Chesani FH, Mezadri T, Lacerda LVV, Mandy A, Nalin F. A percepção de qualidade de vida de pessoas com deficiência motora: diferenças entre cadeirantes e deambuladores. Fisioter. Pesqui. 2018;24(4):418-424. DOI: http://dx.doi.org/10.1590/1809-2950/17018525042018
Veiguela DR, Álvarez AA, Loureda RA, Cela MV, Celeiro IR. Explorando las atividades diarias y la participación social: um estudio en personas con uma condición de salud del aparato locomotor. Rev. Ter. Ocup. Univ. São Paulo. 2018;26(3):513-526. DOI: https://doi.org/10.4322/2526-8910.ctoAO1661
Coutinho BG, França ISX, Coura AS, Medeiros KKAS, Aragão JS. Qualidade de vida no trabalho de pessoas com deficiência física. Trab. Educ. Saúde. 2017;15(2):561-573. DOI: https://doi.org/10.1590/1981-7746-sol00061
Karatas G, Metli N, Yalcin E, Gündüz R, Karatas F, Akyuz M. The effects of the level of spinal cord injury on life satisfaction and disability. Ideggyogy Sz. 2020;73(1-2):27-34. DOI: https://doi.org/10.18071/isz.73.0027
Maurino J, Martínez-Ginés ML, García-Dominguez JM, Del Solar M, Carcelén-Gadea M, Ares-Luque A et al. Workplace difficulties, health-related quality of life, and perception of stigma from the perspective of patients with Multiple Sclerosis. Arch. Phys. Med. Rehabil. 2019;100(3):448-457. DOI: https://doi.org/10.1016/j.msard.2020.102046
Davis E, Reddihough D, Murphy N, Epstein A, Reid SM, Whitehouse A et al. Exploring quality of life of children with cerebral palsy and intellectual disability: What are the important domains of life? Child Care Health Dev. 2017;43(6):854-860. doi: DOI: https://doi.org/10.1111/cch.12501
Uçukun AÇ, Yurdakul FG, Almaz SE, Yavuz K, Ulucakór RK, Sivas F et al. Reported physical activity and quality of life in people with lower limb amputation using two types of prosthetic suspension systems. Prosthet. Orthot. Int. 2019;43(5):519-527. DOI: https://doi.org/10.1177/0309364619869783
Vardon-Bounes F, Gracia R, Abaziou T, Crognier L, Seguin T, Labaste F et al. A study of patients' quality of life more than 5 years after trauma: a prospective follow-up. Health Qual Life Outcomes. 2020;19(18):1-13. DOI: https://doi.org/10.1186/s12955-020-01652-1
Bray N, Spencer LH, Tuersley L, Edwards RT. Development of the MobQoL patient reported outcome measure for mobility-related quality of life. Disabil. Rehabil. 2021;43(23):1207-1220. DOI: https://doi.org/10.1080/09638288.2020.1741701
Ignjatovic TD, Milanovic M, Zegarac N. How services for children with disabilities in Serbia affect the quality of life of their families. Research in Developmental Disabilities. 2017;(68):1-8. DOI: https://doi.org/10.1016/j.ridd.2017.06.009
Mott R, Keller K, Funkenbusch K. "Keep Me Doing What I Love": A Photovoice Evaluation of the Missouri AgrAbility Project. Journal of Agromedicine. 2017;22(4):425-431. DOI: https://doi.org/10.1080/1059924X.2017.1356778
Mohagheg F, Moghaddasi M, Eslami M, Dadfar M, Lester D. Disability and its association with psychological factors in multiple sclerosis patients. Mult Scler Relat Disord. 2021;(49):1-7. DOI: https://doi.org/10.1016/j.msard.2020.102733
Dalise S, Tramonti F, Armienti E, Niccolini V, Caniglia-Tenaglia M, Morganti R et al. Psycho-social impact of social distancing and isolation due to the coVid-19 containment measures on patients with physical disabilities. Eur J Phys Rehabil Med. 2021;57(1):158-165. DOI: https://doi.org/10.23736/S1973-9087.20.06535-1
Schneider S, Taba N, Saapar M, Vibo R, Kõrv J. Determinants of long-term health-related quality of life in young ischemic stroke patients. J Stroke Cerebrovasc Dis. 2021;30(2):1-8. DOI: https://doi.org/10.1016/j.jstrokecerebrovasdis.2020.105499
Pokryszlo-Dragan A, Marschollek K, Chojko A, Karasek M, Kardys A, Marschollek P et al. Social participation of patients with multiple sclerosis. Adv Clin Exp Med. 2020;29(4):469-473. DOI: https://doi.org/10.17219/acem/115237
Madsen UR, Baath C, Berthelsen CB, Hommel A. Age and health-related quality of life, general self-efficacy, and functional level 12 months following dysvascular major lower limb amputation: a prospective longitudinal study. Disabil. Rehabil. 2019;41(24):2900-2909. DOI: https://doi.org/10.1080/09638288.2018.1480668
Schmidt S, Jöstingmeyer P. Depression, fatigue and disability are independently associated with quality of life in patients with multiple Sclerosis: Results of a cross-sectional study. Mult Scler Relat Disord. 2019;(35):265-269. DOI: https://doi.org/10.1016/j.msard.2019.07.029
Dymecka J, Bidzan M. Biomedical variables and adaptation to disease and health-related quality of life in Polish patients with MS. Int. J. Environ. Res. Public Health. 2018;15(12):1-20. DOI: https://doi.org/10.3390/ijerph15122678
Allami M, Yavari A, Karimi A, Masoumi M, Soroush M, Faraji E. Health-related quality of life and the ability to perform activities of daily living: A cross-sectional study on 1079 war veterans with ankle-foot disorders. Military Med Res. 2017;4(37):1-8. DOI: https://doi.org/10.1186/s40779-017-0146-1
Ramadass S, Rai SK, Gupta SK, Kant S, Wadhwa S, Sood M et al. Prevalence of disability and its association with sociodemographic factors and quality of life in a rural adult population of northern India. Natl Med J India. 2018;31(5):268-273. DOI: https://doi.org/10.4103/0970-258X.261179
Chang FH, Liu CH, Hung HP. An in-depth understanding of the impact of the environment on participation among people with spinal cord injury. Disabil. Rehabil. 2017;40(18):2192-2199. DOI: http://dx.doi.org/10.1080/09638288.2017.1327991
Pasin T, Karatekin BD. Determinants of social participation in people with disability. PLoS ONE. 2024;19(5):e0303911. DOI: https://doi.org/10.1371/journal.pone.0303911
Montenegro LC, Magalhães AED, Mendes DR, Tavares MLO, Lachtim SAF, Freitas GL. O cuidado familiar e da Estratégia Saúde da Família na perspectiva do usuário com processo crônico de saúde. Ciênc., Cuid. Saúde. 2020;19:e50166. DOI: https://doi.org/10.4025/ciencuidsaude.v19i0.50166
Melo DCF, Siqueira PC, Maciel ELN, Delcarro JCS, Robaina IMM, Jabor PM et al. People with Disabilities and COVID-19 in the state of Espírito Santo, Brazil: between invisibility and lack of Public Policies. Ciênc. Saúde Colet. 2022;27(11):4203-4212. DOI: https://doi.org/10.1590/1413-812320222711.08232022
Arduim AS, Gabatz RIB, Azevedo MS. Family caregivers’ perception of patients with disabilities on dental treatment under general anesthesia. Rev. Bras. Pesqui. Saúde. 2023;25(1):11-18. DOI: https://doi.org/10.47456/rbps.v25i1.36216
Valverde BBR, Jurdi APS. Analysis of the relationship between early intervention and family quality of life. Rev. Bras. Educ. Espec. 2020;26(2):171-186. DOI: https://doi.org/10.1590/1980-54702020v26e0116
Carmo MMIB, Gilla CG, Quiterio PL. Um estudo sobre a inclusão de pessoas com deficiência no mercado de trabalho brasileiro. Interação Psicol. 2022;24(01):448-458. Available from: https://core.ac.uk/download/pdf/328066711.pdf
Boscateli PCC, Passos AHR, Marin MJS, Silva LCP, Mielo M, Higa EFR. Integrality in physical rehabilitation: professionals’ vision of the difficulties and strategies for its achievement. Rev. Baiana Enferm. 2022;36:e44235. DOI: https://doi.org/10.18471/rbe.v36.44235
Lockmann K, Klein RR. Inclusive Education Policies: fragilization of the right to inclusion of people with disabilities in regular schools. Rev. Educ. Espec. 2022;35:1-20. DOI: https://doi.org/10.5902/1984686X71375
Buriola AA, Silva AST, Ribeiro JEF, Possa J, Silingovschi GL, Gregolin MAZA et al. A percepção dos familiares sobre a unidade de internação psiquiátrica em um hospital geral. Ciênc., Cuid. Saúde. 2021;20:e53197. DOI: https://doi.org/10.4025/ciencuidsaude.v20i0.53197
Sá FD, Brito SM. “I was never ruled by this limitation”: the moral obligations of care among women with disabilities on the impoverished neighborhoods of João Pessoa (Brazil). Horiz. Antropol. 2022;28(64):201-231. DOI: http://dx.doi.org/10.1590/S0104-71832022000300008
Vargas J, Araújo LI. Insertion of people with disabilities in the formal labor market in Piauí state (Brazil): an analysis by sectors, economic activities and types (2000-2019). Rev. Econ. Nordeste. 2024;55(2):104-124. DOI: https://doi.org/10.61673/ren.2024.1498
Spinieli ALP, Souza LP. Healthy and sustainable cities: urban accessibility as an instrument for effectiveness of the human rights of people with disabilities. Rev. Ciênc. Hum. 2021;8(41):1-10. DOI: https://doi.org/10.32813/2179-1120.2021.v14.n1.a672
Araújo YFL, Coura AS, França ISX, Souto RQ, Rocha MA, Silva JC. Acessibilidade da pessoa com deficiência física às unidades básicas de saúde. Cogitare Enferm. 2022;27:e75651. DOI: http://dx.doi.org/10.5380/ce.v27i0.75651
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