‘A MAMÃE SOU EU’: EXPERIÊNCIAS PARENTAIS DE MÃES E PAIS COM DEFICIÊNCIA NO CHILE
Abstract
People with disability are often infantilized and regarded as asexual and “non-reproductive”. As a result, their parental processes and experiences are invisibilized or violated. In the framework of a qualitative study conducted in Chile, 20 in-depth interviews were conducted with mothers and fathers with disability - physical, sensory or intellectual/cognitive. The social environment of people with disability questions their possibilities of being mothers and fathers using eugenic and ableist arguments. Once they have children, the combination of surveillance, lack of support, and barriers makes the position of mothers and fathers very vulnerable. Both mothers and fathers develop strategies of resistance to counteract negative views about their disability and avoid discrimination in a hidden effort that has a high emotional and physical cost for them. The motherhood and fatherhood of people with disability can be seen as a resistance strategy in itself since it allows us to understand that there is no contradiction between caring for another and needing care.
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References
Barnes, C. (2007) “Disability Studies: What’s the point?” Intersticios: Revista Sociológica de Pensamiento Crítico. 1(1).
Bertilsdotter, H. y Lövgrenb, V. (2013) “Doing adulthood through parenthood: Notions of parenthood among people with cognitive disabilities” ALTER, European Journal of Disability Research, 7, 56–68
Björnsdóttir, K. (2013) “The Internet's Empowering and Disempowering Qualities: Online (Re)presentation of Disabled Parents” Disability Studies Quarterly, 33(3) Doi: 10.18061/dsq.v33i3.1740
Borneman, J. (1997) “Caring and being cared for: displacing marriage, kinship, gender and sexuality” International Social Science Journal, 49(154), 573-584.
Blackford, K. (1993) “Erasing mothers with disabilities through canadian family policy” Disability, Handicap & Society, 8(3), 281-294.
Convención de Naciones Unidas sobre los Derechos de las Personas con Discapacidad (2006). Revisado en: https://www.un.org/esa/socdev/enable/documents/tccconvs.pdf
Cruz, M.A., Reyes, M.J. y Cornejo, M. (2012) “Conocimiento situado y el problema de la subjetividad del investigador/a” Cinta Moebio 45, 253-274
Cruz Pérez, M. P. (2015) “Acceso a derechos sexuales y reproductivos de las mujeres con discapacidad: el papel de las y los prestadores de servicios” Revista Estudios de Género. La Ventana. 42, 7 – 46.
Frederick. A. (2015) “Between stigma and mother-blame: blind mothers’: experiences in USA hospital postnatal care”. Sociology of Health & Illness, 37(8), 1127–1141. Doi: 10.1111/1467-9566.12286.
Frederick. A. (2017a) “Risky Mothers and the Normalcy Project: Women with Disabilities Negotiate Scientific Motherhood” Gender & Society, 31(1), 74–95. Doi: 10.1177/0891243216683914.
Frederick. A. (2017b) "Visibility, Respectability, and Disengagement: The Everyday Resistance of Mothers with Disabilities." Social Science & Medicine, Vol. 181, pp. 131-138. Doi: https://doi.org/10.1016/j.socscimed.2017.03.030.
Hays, S. (1996). The cultural contradictions of motherhood. New Haven, CT: Yale University Press.
ANONIMIZADO
ANONIMIZADO
Höglund, B., Lindgren, P. y Larsson, M. (2013) “Midwives’ knowledge of, attitudes towards and experiences of caring for women with intellectual disability during pregnancy and childbirth: A cross-sectional study in Sweden”, Midwifery, 29(8), 950–955.
Li, H., Parish, S., Mitra M. y Nicholson J. (2016). “Health of US parents with and without disabilities”, Disability and Health Journal, 10(2), 303-307. Doi: 10.1016/j.dhjo.2016.12.007
Malacrida, C. (2007) “Negotiating the Dependency/Nurturance Tightrope: Dilemmas of Motherhood and Disability” Canadian Review of Sociology, 44(4), 469-493 Doi: 10.1111/j.1755-618X.2007.tb01353.x
Malacrida, C. (2009) “Performing motherhood in a disabling world: dilemmas of motherhood, femininity and disability”, International Journal of Qualitative Studies in Education, 22(1), 99–117.
Mason, J. (2002), Qualitative Researching. London: Sage.
Miller, T. (2011) Making sense of fatherhood. Cambridge: Cambridge University Press.
Nind, M. (2017). “The practical wisdom of inclusive research”. Qualitative Research, 17(3), 278–288.
O’Dell, L., Brownlow, Ch., Bertilsdotter Rosqvist, H. (2018) “Different adulthoods: Normative development and transgressive trajectories” Feminism and Psychology, 28(3), 349-354.
Oliver, M. J. (1999) “Capitalism, disability and ideology: A materialist critique of the Normalization principle”. Conference Paper, A quarter-century of normalization and social role valorization: evolution and impact; 1994; Ottawa University of Ottawa Press, pp 163-174.
Parchomiuk, M. (2014) “Social context of disabled parenting”. Sexuality and Disability, 32, 231–242, Doi: 10.1007/s11195-014-9349-5.
Pérez Bolívar, R. (2016) “La ceguera y la maternidad: perspectiva del embarazo, parto y puerperio por parte de la mujer con diversidad funcional sensorial: accesibilidad e interpretación de su proceso” Musas, 1, 33-48.
Prilleltensky, O. (2003) “A ramp to motherhood: the experiences of mothers with physical disabilities”, Disability and Sexuality, 21(1), 21–47.
Prilleltensky, O. (2004) “My child is not my career: mothers with physical disabilities and the well‐being of children” Disability and Society, 19(3), 209-223.
Redshaw, M., Malouf, R., Gao H. y Gray, R. (2013) “Women with disability: the experience of maternity care during pregnancy, labour and birth and the postnatal period” Pregnancy and Childbirth, 13, 174.
Rivera Drew, J, A. (2009) "Disability and the Self-Reliant Family: Revisiting the Literature on Parents with Disabilities." Marriage & Family Review, 45, 431-447. Doi:org/10.1080/01494920903048734
Rix, J., Carrizosa, H., Seale, J., Sheehy, K. y Hayhoe, S. (2019) “The while of participation: A systematic review of participatory research involving people with sensory impairments and/or intellectual impairments”, Disability & Society, DOI:10.1080/09687599.2019.1669431
Ruiz, J. (2009). Análisis sociológico del discurso: Métodos y lógicas. Forum Qualitative SocialResearch, 10(2), 1–32. Art. 26.
Servicio Nacional de la Discapacidad (SENADIS) (2018) Boletín de Derechos Sexuales y Reproductivos. Revisado en: https://www.senadis.gob.cl/pag/472/1758/boletines_informativos_2018
Slater, J., Ágústsdóttir, E., Haraldsdóttir, F. (2018) “Becoming intelligible woman: Gender, disability and resistance at the border zone of youth”. Feminism & Psychology, 28(3), 409–426
Strnadová, I., Bernoldová, J. & Adamčíková, Z. (2018): ‘She will know that her mother’s doing something for her’: women with intellectual disabilities assuming the mother identity, Disability & Society, DOI: 10.1080/09687599.2018.1505602Tilley et al., 2012
Walsh-Gallagher, D., Sinclair, M. y Mc Conkey, R. (2012) “The ambiguity of disabled women’s experiences of pregnancy, childbirthand motherhood: A phenomenological understanding” Midwifery, 28, 156–162.
World Health Organization (WHO) (2014) Eliminating forced, coercive and otherwise involuntary sterilization. Revisado en: http://www.unaids.org/sites/default/files/media_asset/201405_sterilization_en.pdf
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