SPIRITUALITY AND RELIGIOSITY IN MOTHERS OF CHILDREN WITH HEMATOLOGIC CANCER

Keywords: Spirituality, family, bone marrow transplantation, phenomenological psychology.

Abstract

Spirituality and religiosity are important sources of emotional and social support for families of severely ill children, specially when it comes to potentially terminal illnesses. Hematopoietic stem cell transplantation is one of the most daring and promising alternatives that have emerged in the last decades to treat onco-hematological diseases. It is a highly invasive procedure and involves risk of death due to its adverse effects, therefore, it requires close involvement of a family caregiver during all of its stages, which exposes this family member to continuous stressors. The goal of this study was to investigate the meaning attributed to spirituality and religiosity by mothers of hematologic cancer patients undergoing hematopoietic stem cell transplantation. This is a qualitative research, with a descriptive-exploratory design and a phenomenological fundamentation. Ten mothers whose children had undergone hematopoietic stem cell tranplantation were interviewed. Individual interviews were audio-taped and later transcribed and subjected to the comprehensive analysis of the reports. Spirituality and religiosity emerged from the speeches of the participants colored by different professed religious beliefs as a source of support and encouragement for family caregivers, helping them to deal with the adverse situation of being companion of a patient undergoing a high-risk procedure. Results corroborated that spirituality and religiosity are important coping resources.

Downloads

Download data is not yet available.

Author Biographies

Iara Silva Freitas, FFCLRP-USP-BR
Psicóloga pela Faculdade de Filosofia, Ciências e Letras de Ribeirão Preto da Universidade de São Paulo (FFCLRP-USP).
erika arantes de Oliveira Cardoso, FFCLRP-USP-BR
Mestre e Doutora em Psicologia. Psicóloga do Departamento de Psicologia da FFCLRP-USP. Membro do Laboratório de Ensino e Pesquisa em Psicologia da Saúde - LEPPS (FFCLRP-USP-CNPq).
Manoel Antônio Santos, FFCLRP-USP-BR
Professor Associado do Programa de Pós-Graduação em Psicologia da FFCLRP-USP. Coordenador do Laboratório de Ensino e Pesquisa em Psicologia da Saúde - LEPPS (FFCLRP-USP-CNPq). Bolsista de Produtividade em Pesquisa do CNPq, nível 1B.

References

Andres, J. C., Lima, R. A. G., & Rocha, S. M. M. (2005). Experiência de pais e outros familiares no cuidado à criança e ao adolescente após o transplante de medula óssea. Revista Brasileira de Enfermagem, 58(4), 416-421. Recuperado de http://www.scielo.br/pdf/reben/v58n4/a07v58n4

Backes, D. S., Backes, M. S., Medeiros, H. M. F., Siqueira, D. F., Pereira, S. B., Dalcin, C. B., & Rupolo, I. (2012). Spirituality workshops: alternative care for the comprehensive treatment of drug addicts. Revista da Escola de Enfermagem da USP, 46(5), 1253-1258. doi: 10.1590/S0080-62342012000500030

Bevans, M., Wehrlen, L., Castro, K., Prince, P., Shelburne, N., Soeken, K., & Wallen, G. (2014). A problem-solving education intervention in caregivers and patients during allogeneic hematopoietic stem cell transplantation. Journal of Health Psychology, 19(5), 602-617. doi: 10.1177/1359105313475902

Bruns, M. A. T., & Holanda, A. F. (2001). Psicologia e pesquisa fenomenológica: reflexões e perspectivas. São Paulo: Omega.

Cooke, L., Grant, M., Eldredge, D. H., Maziaiz, R. T., & Nail, L. M. (2011). Informal caregiving in HCT patients. European Journal of Oncology Nursing, 15(5), 500-507. doi: 10.1016/j.ejon.2011.01.007

Çuhadar, D., Tanriverdi, D., Pehlivan, M., Kurnaz, G., & Alkan, S. (2016). Determination of the psychiatric symptoms and psychological resilience levels of hematopoietic stem cell transplant patients and their relatives. European Journal of Cancer Care, 25(1), 112-121. doi: 10.1111/ecc.12219

El-Jawahri, A., Traeger, L., Kuzmuk, K., Eusebio, J., Vandusen, H., Shin, J., K., ... Teme, J. S. (2015). Quality of life and mood of patients and family caregivers during hospitalization for hematopoietic stem cell transplantation. Cancer, 121(6), 951-959. doi: 10.1002/cncr.29149

Espíndula, J. A., Valle, E., R. M., & Bello, A. A. (2010). Religião e espiritualidade: um olhar de profissionais de saúde. Revista Latino-Americana de Enfermagem, 18(6), 1229-1236. doi: 10.1590/S0104-11692010000600025

Fife, B. L., Monahan, P. O., Abonour, R., Wood, L. L., & Stump, T. E. (2009). Adaptation of family caregivers during the acute phase of adult BMT. Bone Marrow Transplantation, 43(2), 959-966. doi: 10.1038/bmt.2008.405

Fleck, E. C. D., & Dillmann, M. (2012). “A vossa graça nos nossos sentimentos”: a devoção à Virgem como garantia da salvação das almas em uma manual de devoção do século XVIII. Revista Brasileira de História, 32(63), 83-118. doi: 10.1590/S0102-01882012000100005

Fonseca, J. P. (2001). Luto antecipatório: as experiências familiares diante de uma morte anunciada (Dissertação de Mestrado). Pontifícia Universidade Católica, São Paulo.

Fonseca, J. P., & Fonseca, M.I. (2002). Luto antecipatório. In M. H. P. Franco (Org), Estudos avançados sobre o luto. Campinas: Livro Pleno.

Jobe-Shields, L., Alderfer, M. A., Barrera, M., Vannatta, K., Currier, J. M., & Phipps, S. (2009). Parental depression and family environment predict distress on children prior to stem-cell transplantation. Journal of Developmental & Behavioral Practices, 30(2), 140-146. doi: 10.1097/DBP.0b013e3181976a59

Koerner, S. S., Pedroza, R., & Shirai, Y. (2013). Role of religious/spiritual beliefs and practices among latino family caregivers of Mexican descent. Journal of Latina/o Psychology, 1(2), 95-111. doi: 10.1037/a0032438

Kovács, M. J. (2007). Espiritualidade e psicologia – cuidados compartilhados. O Mundo da Saúde, 31(2), 246-255. Recuperado de http://www.saocamilo-sp.br/pdf/mundo_saude/53/12_Espiritualidade.pdf

Larsen, H. B., Heilmann, C., Johansen, C., & Adamsen, L. (2011). An analysis of parental roles during haematopoetic stem cell transplantation of their offspring: a qualitative and participant observational study. Journal of Advanced Nursing, 67(7), 1458-1467. doi: 10.1111/j.1365-2648.2010.05587

Laudenslager, M. L., Simoneau, T. L., Kilbourn, K., Natvig, C., Philips, S., Spradley, J., … Mikulich-Gilbertson, S. K. (2015). A randomized control trial of a psychosocial intervention for caregivers of allogeneic hematopoietic stem cell transplant patients: effects on distress. Bone Marrow Transplant, 50(8), 1110-1118. doi: 10.1038/bmt.2015.104

Martins, J., & Bicudo, M. A. V. (2003). A pesquisa qualitativa em fenomenologia: fundamentos e recursos básicos (3a ed.). São Paulo: Centauro.

Matias, A. B., Oliveira-Cardoso, E., Mastropietro, A. P., Voltarelli, J. C., & Santos, M. A. (2011). Qualidade de vida e transplante de células tronco-hematopoéticas alogênico: um estudo longitudinal. Estudos de Psicologia (Campinas), 28(2), 187-197. doi: 10.1590/S0103-166X2011000200006

Mayer, D. K., Tighiouart, H., Terrin, N., Stewart, S., Peterson, E., Jeruss, S., & Parsons, S. K. (2009). A brief report of caregiver needs and resource utilization during pediatric hematopoietic stem cell transplantation. Journal of Pediatric Oncology Nursing, 26(4), 223-229. doi: 10.1177/1043454209340409

Oliveira, E.A., Santos, M. A., & Mastropietro, A. P. (2010). Apoio psicológico na terminalidade: ensinamentos para a vida. Psicologia em Estudo, 15 (2), 235-244. doi: 10.1590/S1413-73722010000200002

Pennarola, B. W., Rodday, A. M., Mayer, D. K., Ratichek, S. J., Davies, S. M., Syrjala, K. L., … Parsons, S. K. (2012). Factors associated with parental activation in pediatric hematopoietic stem cell transplant. Medical Care Research and Review, 69(2), 194-214. doi: 10.1177/1077558711431460

Pessini, L. (2007). A Espiritualidade interpretada pelas ciências e pela saúde. O Mundo da Saúde, 31(2), 187-195. Recuperado de http://www.saocamilo-sp.br/pdf/mundo_saude/53/06_a_espiritualidade.pdf

Rodday, A. M., Pedowitz, E. J., Mayer, D. K., Ratichek, S. J., Gien, C. W., & Parsons, S. K. (2012). Parental caregiving of children prior to hematopoietic stem cell transplant. Research in Nursing & Health, 35(4), 328-339. doi: 10.1002/nur.21485

Schneider, M. A., & Mannell, R. C. (2006). Beacon in the storm: an exploration of the spirituality and faith of parents whose children have cancer. Issues in Comprehensive Pediatric Nursing, 29,(1) 3-24. doi: 10.1080/01460860500523731

Torskenaes, K. B., Baldacchino, D. R., Kalfoss, M., Baldacchino, T., Borg, J., Falzon, M., & Grima, K. (2015). Nurses’ and caregivers’ definition of spirituality from the Christian perspective: a comparative study between Malta and Norway. Journal of Nursing Management, 23(1), 39-53. doi: 10.1111/jonm.12080

Triviños, A.N.S. (1992). Introdução à pesquisa em ciências sociais: a pesquisa qualitativa em educação. São Paulo: Atlas.

Published
2017-09-24
How to Cite
Freitas, I. S., Cardoso, erika arantes de O., & Santos, M. A. (2017). SPIRITUALITY AND RELIGIOSITY IN MOTHERS OF CHILDREN WITH HEMATOLOGIC CANCER. Psicologia Em Estudo, 22(3), 433-447. https://doi.org/10.4025/psicolestud.v22i3.34606
Section
Artigos originais

 

0.3
2019CiteScore
 
 
7th percentile
Powered by  Scopus

 

 

0.3
2019CiteScore
 
 
7th percentile
Powered by  Scopus