VULNERABILITIES IN THE CARE FROM THE PERSPECTIVE OF MOTHERS OF INFANTS WITH MICROCEPHALY
Abstract
The general objective of this study was to understand elements of vulnerabilities involved in the care of children with microcephaly, from the perspective of the mothers. It was an exploratory study with a qualitative approach. To collect the data, a sociodemographic questionnaire and interview based on the Method of Scenes were used. The analysis of the interviews was performed using the thematic categorical analysis technique. Thirteen mothers with a mean age of 25 years, ranging from 16 to 37 years old, participated. It was observed, in the statements of the participants, elements of vulnerabilities, related to the doubts and tensions about the discovery of the congenital malformation in the child, above all, considering the unpreparedness of the health team at the time of diagnosis; as well as the lack of confirmation about the causes of microcephaly. In addition, deficiencies related to social support were observed as a family and/or companion, demanding from these women an exclusive dedication to the care of their children, mainly in the face of a daily routine of care. It concludes by pointing to the relevance of this study, since when referring to a recent epidemic, such data can assist the practice of health professionals, in addition to being able to contribute to the construction, updating and implementation of targeted public policies for children with microcephaly and, consequently, their families.Downloads
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